Care.data: when good intentions are not enough

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• Ian Batten, University of Birmingham
• Thursday 08 May 2014, 11:00-12:00
• Room 245, School of Computer Science.

If you have a question about this talk, please contact Matthijs Melissen.

Care.data is a project sponsored by NHS England to link GP records with Hospital Episode Statistics. HES has been available to researchers for about twenty years, but there is no similar programme covering GP care. It is therefore difficult to evaluate the quality and effectiveness of care, because it is unusual for a patient’s treatment to consist solely of hospital episodes.

The project has become mired in political controversy about governance, confidentiality, consent, ownership and acceptable use. There have now been two six month pauses in deployment, and it seems unlikely that the current delay will be sufficient to resolve all of the outstanding issues. Few dispute the potential benefits of the project, but there is widespread concern about how it has been undertaken.

I will give a brief history of the project, outline the major areas where it has failed, and set out some research topics which might be of interest to some in the group.

This talk is part of the Computer Security Seminars series.

This talk is included in these lists:

• Computer Science Departmental Series
• Computer Science Distinguished Seminars
• Computer Security Seminars
• Room 245, School of Computer Science
• computer sience

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